Bioethics is the study of the ethical issues emerging from advances in biology and medicine. It is also moral discernment as it relates to medical policy and practice. Bioethicists are concerned with the ethical questions that arise in the relationships among life sciences, biotechnology, medicine, politics, law, and philosophy. It includes the study of values ("the ethics of the ordinary") relating to primary care and other branches of medicine.
Video Bioethics
Etymology
The term Bioethics (Greek bios, life; ethos, behavior) was coined in 1926 by Fritz Jahr in an article about a "bioethical imperative" regarding the use of animals and plants in scientific research. In 1970, the American biochemist Van Rensselaer Potter used the term to describe the relationship between the biosphere and a growing human population. Potter's work laid the foundation for global ethics, a discipline centered around the link between biology, ecology, medicine, and human values.
Maps Bioethics
Purpose and scope
The field of bioethics has addressed a broad swathe of human inquiry, ranging from debates over the boundaries of life (e.g. abortion, euthanasia), surrogacy, the allocation of scarce health care resources (e.g. organ donation, health care rationing) to the right to refuse medical care for religious or cultural reasons. Bioethicists often disagree among themselves over the precise limits of their discipline, debating whether the field should concern itself with the ethical evaluation of all questions involving biology and medicine, or only a subset of these questions. Some bioethicists would narrow ethical evaluation only to the morality of medical treatments or technological innovations, and the timing of medical treatment of humans. Others would broaden the scope of ethical evaluation to include the morality of all actions that might help or harm organisms capable of feeling fear.
The scope of bioethics can expand with biotechnology, including cloning, gene therapy, life extension, human genetic engineering, astroethics and life in space, and manipulation of basic biology through altered DNA, XNA and proteins. These developments will affect future evolution, and may require new principles that address life at its core, such as biotic ethics that values life itself at its basic biological processes and structures, and seeks their propagation.
Principles
One of the first areas addressed by modern bioethicists was that of human experimentation. The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research was initially established in 1974 to identify the basic ethical principles that should underlie the conduct of biomedical and behavioral research involving human subjects. However, the fundamental principles announced in the Belmont Report (1979)--namely, respect for persons, beneficence and justice--have influenced the thinking of bioethicists across a wide range of issues. Others have added non-maleficence, human dignity and the sanctity of life to this list of cardinal values. Overall, the Belmont Report (1979) has guided research in a direction focused on protecting vulnerable subjects as well as pushing for transparency between the researcher and the subject. Research has flourished within the past 40 years and due to the advance in technology, it is thought that human subjects have outgrown the Belmont Report (1979) and the need for revision is desired.
Another important principle of bioethics is its placement of value on discussion and presentation. Numerous discussion based bioethics groups exist in universities across the United States to champion exactly such goals. Examples include the Ohio State Bioethics Society and the Bioethics Society of Cornell. Professional level versions of these organizations also exist.
Many bioethicists, especially medical scholars, accord the highest priority to autonomy. They believe that each patient should determine which course of action they consider most in line with their beliefs. In other words, the patient should always have the freedom to choose their own treatment .
Medical ethics
Medical ethics is the study of moral values and judgments as they apply to medicine. The four main moral commitments are respect for autonomy, beneficence, nonmaleficence, and justice. Using these four principles and thinking about what the physicians' specific concern is for their scope of practice can help physicians make moral decisions. As a scholarly discipline, medical ethics encompasses its practical application in clinical settings as well as work on its history, philosophy, theology, and sociology.
Medical ethics tends to be understood narrowly as an applied professional ethics, whereas bioethics has a more expansive application, touching upon the philosophy of science and issues of biotechnology. The two fields often overlap, and the distinction is more a matter of style than professional consensus. Medical ethics shares many principles with other branches of healthcare ethics, such as nursing ethics. A bioethicist assists the health care and research community in examining moral issues involved in our understanding of life and death, resolving ethical dilemmas in medicine and science. Examples of this would be the topic of equality in medicine, the intersection of cultural practices and medical care, and issues of bioterrorism.
Perspectives and methodology
Bioethicists come from a wide variety of backgrounds and have training in a diverse array of disciplines. The field contains individuals trained in philosophy such as H. Tristram Engelhardt, Jr. of Rice University, Baruch Brody of Rice University, Peter Singer of Princeton University, Daniel Callahan of the Hastings Center, and Daniel Brock of Harvard University, medically trained clinician ethicists such as Mark Siegler of the University of Chicago and Joseph Fins of Cornell University, lawyers such as Nancy Dubler of Albert Einstein College of Medicine or Jerry Menikoff of the federal Office of Human Research Protections, political scientists like Francis Fukuyama, religious studies scholars including James Childress, public intellectuals like Amitai Etzioni of The George Washington University, and theologians like Lisa Sowle Cahill and Stanley Hauerwas. The field, once dominated by formally trained philosophers, has become increasingly interdisciplinary, with some critics even claiming that the methods of analytic philosophy have had a negative effect on the field's development. Leading journals in the field include The Journal of Medicine and Philosophy, The Hastings Center Report, the American Journal of Bioethics, the Journal of Medical Ethics, Bioethics, the Kennedy Institute of Ethics Journal and the Cambridge Quarterly of Healthcare Ethics. Bioethics has also benefited from the process philosophy developed by Alfred North Whitehead.
Many religious communities have their own histories of inquiry into bioethical issues and have developed rules and guidelines on how to deal with these issues from within the viewpoint of their respective faiths. The Jewish, Christian and Muslim faiths have each developed a considerable body of literature on these matters. In the case of many non-Western cultures, a strict separation of religion from philosophy does not exist. In many Asian cultures, for example, there is a lively discussion on bioethical issues. Buddhist bioethics, in general, is characterised by a naturalistic outlook that leads to a rationalistic, pragmatic approach. Buddhist bioethicists include Damien Keown. In India, Vandana Shiva is a leading bioethicist speaking from the Hindu tradition. In Africa, and partly also in Latin America, the debate on bioethics frequently focuses on its practical relevance in the context of underdevelopment and geopolitical power relations. Masahiro Morioka argues that in Japan the bioethics movement was first launched by disability activists and feminists in the early 1970s, while academic bioethics began in the mid-1980s. During this period, unique philosophical discussions on brain death and disability appeared both in the academy and journalism.
Criticism
As a study, bioethics has also drawn criticism. For instance, Paul Farmer noted that bioethics tends to focus its attention on problems that arise from "too much care" for patients in industrialized nations, while giving little or no attention to the ethical problem of too little care for the poor. Farmer characterizes the bioethics of handling morally difficult clinical situations, normally in hospitals in industrialized countries, as "quandary ethics". He does not regard quandary ethics and clinical bioethics as unimportant; he argues, rather, that bioethics must be balanced and give due weight to the poor.
Additionally, bioethics has been condemned for its lack of diversity in thought, particularly with regards to race. Even as the field has grown to include the areas of public opinion, policymaking, and medical decisions, little to no academic writing has been authored concerning the intersection between race- especially the cultural values imbued in that construct- and bioethical literature. John Hoberman illustrates this in a 2016 critique, in which he points out that bioethicists have been traditionally resistant to expanding their discourse to include sociological and historically relevant applications. Central to this is the notion of white normativity, which establishes the dominance of white hegemonic structures in bioethical academia and tends to reinforce existing biases.
Parallel criticisms have been made concerning biases in respect to the experience of disability. Many people in the disabled community and their allies have demonstrated that mainstream bioethics tends to be significantly influenced by ablebodied dominance and thus embrace ableist premises for the provision of medical care and resources. People such as Peter Singer, who have called for infant euthanasia and rationing towards disabled adults as a means to curtail healthcare costs are considered to be propagators of hate speech.
Issues
Areas of health sciences that are the subject of published, peer-reviewed bioethical analysis include:
See also
- Bioethics (journal)
- Biotechnology risk
- Cytoplasmic transfer
- Eugenics
- Feminist Approaches to Bioethics
- Hastings Center Report (journal)
- Johns Hopkins Berman Institute of Bioethics
- Kennedy Institute of Ethics Journal
- Medical law
- Neuroethics
- Preimplantation genetic diagnosis
- Resources for clinical ethics consultation
- The Convention on Human Rights and Biomedicine
- Yeshiva University Medical Ethics Society
References
Further reading
General bioethics
- Andre, Judith (2002), Bioethics as Practice, Chapel Hill and London: University of North Carolina Press, ISBN 0-8078-2733-9
- Appel, Jacob (August 9, 2009), "A Supreme Court for Bioethics", Huffington Post
- Aulisio, Mark; Arnold, Robert; Younger, Stuart (2003), Ethics Consultation; from theory to practice, Baltimore, London: Johns Hopkins University Press, ISBN 0-8018-7165-4
- Faden, Ruth (2004), Bioethics: A field in transition, Journal of Law, Medicine & Ethics
- Caplan, Arthur Smart Mice Not So Smart People. Rowman Littlefield 2006
- Glad, John (2008), Future Human Evolution: Eugenics in the Twenty-First Century (PDF), Hermitage Press, ISBN 1-55779-154-6
- Emanuel, Ezekiel; Crouch, Robert; Arras, John; Moreno, Jonathan; Grady, Christine (2003), Ethical and Regulatory Aspects of Clinical Research, Baltimore, London: Johns Hopkins University Press, ISBN 0-8018-7813-6
- Crowley, Mary (ed) (2008), From Birth to Death and Bench to Clinic: The Hastings Center Bioethics Briefing Book, Garrison, New York: The Hastings Center CS1 maint: Extra text: authors list (link)
- Beauchamp, Tom; Childress, James (2001), Principles of Biomedical Ethics, Oxford, New York: Oxford University Press, ISBN 0-19-514332-9
- Häyry, Matti; Tuija Takala; Peter Herissone-Kelly; Gardar Árnason (Eds.) (2010). Arguments and Analysis in Bioethics. Amsterdam/New York: Rodopi. ISBN 978-90-420-2802-9
- Jones, David Albert; MacKellar, Calum, eds. (2012). Chimera's Children: Ethical, Philosophical and Religious Perspectives on Human-Nonhuman Experimentation. London, New York: Continuum Books. ISBN 9781441195807.
- Jonsen, Albert; Veatch, Robert; Walters, leRoy (1998), SourceBook in Bioethics, Washington: Georgetown University Press, ISBN 0-87840-685-9
- Jonathan, Baron (2006), Against Bioethics, The MIT Press, ISBN 978-0-262-02596-6
- Kaldis, Byron (2011). "Bioethics". Sage Encyclopedia of Green Technology. Thousand Oaks: CA, Sage.
- McGee, Glenn (2003), Pragmatic Bioethics, Cambridge: Massachusetts Institute of Technology Press, ISBN 0-262-63272-1
- Khushf, George (ed) (2004), Handbook of Bioethics: taking stock of the field from a philosophical perspective, Dordrecht, Boston, London: Kluwer Academic Publishers, ISBN 1-4020-1893-2 CS1 maint: Extra text: authors list (link)
- Luna, Florencia, (2006) Bioethics and Vulnerability: A Latin American View. Edited by Peter Herissone-Kelly. Translated from Spanish by Laura Pakter. Amsterdam/New York: Rodopi. ISBN 978-90-420-2073-3
- McGee, Glenn (2003), Pragmatic Bioethics (2nd Edition), Cambridge: The MIT Press, ISBN 978-0-262-63272-0
- Korthals, Michiel; Robert J. Bogers (eds.) (2004), Ethics for Life Scientists, Springer, ISBN 978-1-4020-3178-6 CS1 maint: Extra text: authors list (link)
- Kuczewski, Mark G.; Ronald Polansky (eds.) (2002), Bioethics: Ancient Themes in Contemporary Issues, The MIT Press, ISBN 978-0-262-61177-0 CS1 maint: Extra text: authors list (link)
- Murphy, Timothy (2004), Case Studies in Biomedical Research Ethics, The MIT Press, ISBN 978-0-262-13437-8
- O'Neill, Onora (2002), Autonomy and Trust in Bioethics, Cambridge: Cambridge University Press, ISBN 0 521 81540 1
- Ravitsky, Vardit; Fiester, Autumn; Caplan, Arthur (eds.) (2009), The Penn Center Guide to Bioethics, New York: Springer, ISBN 978-0-8261-1522-5 CS1 maint: Extra text: authors list (link)
- Saxén, Heikki (2017), A Cultural Giant : An interpretation of bioethics in light of its intellectual and cultural history (PDF) (Open access), Tampere: Tampere University Press, ISBN 978-952-03-0522-2
- Singer, Peter A.; Viens, A.M. (2008), Cambridge Textbook of Bioethics, Cambridge: Cambridge University Press, ISBN 978-0-521-69443-8
- Sugarman, Jeremy; Sulmasy, Daniel (2001), Methods in Medical Ethics (Confessions of a Medicine Man), Washington: Georgetown University Press, ISBN 0-262-70072-7
- Tauber, Alfred I (2005), Patient Autonomy and the Ethics of Responsibility, Cambridge: MIT Press, ISBN 0-262-70112-X
- Elahi, Dr.Mansoor (2011), Medical ethics:A practical guide to patient care related ethics, conventions and laws,(downloadable www.medical-ethics.org), Islamabad, Pakistan: medical testing and research organization publishing unit, mtro, ISBN 978-969-8186-02-9
Jewish bioethics
- Bleich, J. David. (1981). Judaism and Healing. New York: Ktav. ISBN 0-87068-891-X
- Dorff, Elliot N. (1998). Matters of Life and Death: A Jewish Approach to Modern Medical Ethics. Philadelphia: Jewish Publication Society. ISBN 0-8276-0647-8
- Feldman DM. (1974). Marital relations, birth control, and abortion in Jewish law. New York: Schocken Books.
- Freedman B. (1999). Duty and healing: foundations of a Jewish bioethic. New York: Routledge. ISBN 0-415-92179-1
- Jakobovits I. (1959). Jewish Medical Ethics. New York: Bloch Publishing.
- Mackler, Aaron L. (ed.) (2000). Life & Death Responsibilities in Jewish Biomedical Ethics. New York: JTS. ISBN 0-87334-081-7.
- Maibaum M. "A 'progressive' Jewish medical ethics: notes for an agenda" in Journal of Reform Judaism 1986;33(3):27-33.
- Rosner, Fred. (1986). Modern medicine and Jewish ethics. New York: Yeshiva University Press. ISBN 0-88125-091-0
- Conservative Judaism Vol. 54(3), Spring 2002 (contains a set of six articles on bioethics)
- Zohar, Noam J. (1997). Alternatives in Jewish Bioethics. Albany: State University of New York Press. ISBN 0-7914-3273-4
Christian bioethics
Christian bioethics describes how to best apply Christian values to ongoing advancements in science and medicine Christian ethical thought has three categories of application: Biblical ethics, natural law, and the situational approach. These three theories can be used in order to better interpret the morality of a wide variety of medical and research-based decisions.
- Colson, Charles W. (ed.) (2004). Human Dignity in the Biotech Century: A Christian Vision for Public Policy. Downers Grove, Illinois: InterVarsity Press. ISBN 0-8308-2783-8
- Demy, Timothy J. and Gary P. Stewart. (1998). Suicide: A Christian Response: Crucial Considerations for Choosing Life. Grand Rapids: Kregel. ISBN 0-8254-2355-4
- Pope John Paul II. (1995). Evangelium Vitae: The Gospel of Life. New York: Random House. ISBN 0-8129-2671-4
- Kilner, John et al. (1995). Bioethics and the Future of Medicine: A Christian Appraisal. Grand Rapids, Michigan: Wm. B. Eerdmans Publishing Company. ISBN 0-8028-4081-7
- Kilner, John F., Arlene B. Miller, and Edmund D. Pellegrino (eds.). (1996). Dignity and Dying: A Christian Appraisal. Grand Rapids, MI: Eerdmans Publishing Co.; and Carlisle, United Kingdom: Paternoster Press. ISBN 0-8028-4232-1
- Meilaender, Gilbert (2004). Bioethics: A Primer For Christians. Grand Rapids, Michigan: Wm. B. Eerdmans Publishing Company. ISBN 0-8028-4234-8
- Loudovikos, Nikolaos, Protopresbyter (2002). The Individualization of Death and Euthanasia, Holy Synod of the Church of Greece, Committee of Bioethics, Scientific Conference on Euthanasia (Athens, May 17-18, 2002), retrieved on February 27, 2009. (Article in Greek).
- Pope Paul VI. (1968). Humanae vitae: Human Life. Vatican City.
- Cardinal William Levada. (2008) Instruction 'Dignitas Personae' on certain Bioethical Questions.
- Smith, Wesley J. (2004). Consumer's Guide to A Brave New World. San Francisco: Encounter Books. ISBN 1-893554-99-6
- Smith, Wesley J. (2000). Culture of Death: The Assault on Medical Ethics in America. San Francisco: Encounter Books. ISBN 1-893554-06-6
- Smith, Wesley J. (1997). Forced Exit: The Slippery Slope from Assisted Suicide to Murder. New York: Times Books. ISBN 0-8129-2790-7
- Stewart, Gary P. et al. (1998). Basic Questions on Suicide and Euthanasia: Are They Ever Right? BioBasics Series. Grand Rapids: Kregel. ISBN 0-8254-3072-0
- Stewart, Gary P. et al. (1998). Basic Questions on End of Life Decisions: How Do We Know What's Right? Grand Rapids: Kregel. ISBN 0-8254-3070-4
- Westphal, Euler Renato. O Oitavo dia - na era da seleção artificial (See The Eighth Day (book) Review) . 1. ed. São Bento do Sul: União Cristã, 2004. v. 01. 125 p. ISBN 85-87485-18-0
- Archimandrite Adam (Vakhtang Akhaladze)A Human in Bioethical Space and Time. 2010
Muslim bioethics
- Hamdy, Sherine. "Our Bodies Belong to God: Organ Transplantation, Islam, and the Struggle for Human Dignity in Egypt" (2012) Berkeley: University of California Press. ISBN 978-0-520-27176-0
- Al Khayat MH. "Health and Islamic behaviour" in: El Gindy AR, editor, Health policy, ethics and human values: Islamic perspective. Kuwait: Islamic Organization of Medical Sciences; 1995. pp. 447-50.
- Ebrahim, Abul Fadl Mohsin. (1989). Abortion, Birth Control and Surrogate Parenting. An Islamic Perspective. Indianapolis. ISBN 0-89259-081-5
- Esposito, John. (ed.) (1995). "Surrogate Motherhood" in The Oxford Encyclopedia of the Modern Islamic World (vol. 4). New York: Oxford University Press. ISBN 0-19-509615-0
- Karic, Enes. "The Ethics of Cloning" in Islamica Magazine Fall/Winter 2004. Issue #11
- Islamic Medical and Scientific Ethics (IMSE) Special Collection and Database at Georgetown University
Buddhist bioethics
Buddhist ideology emphasizes the sanctity of life. Traditional Buddhists tend to regard issues of abortion and euthanasia as acts of killing due to the intent behind those actions. As new medical technologies raise more questions about bioethics, Buddhists turn to their ancient texts to search for enlightenment. Buddhist texts focus on specific issues such as sickness and death and gives some insight about how to prepare the mind for death.
- Florida, R. E. (1994) Buddhism and the Four Principles in Principles of Health Care Ethics, ed. R. Gillon and A. Lloyd, Chichester: John Wiley & Sons, 105-16.
- Keown, Damien. (1995) Buddhism & Bioethics. London and New York: Macmillan/St. Martins Press.
Hindu bioethics
- Coward, H. G., J. J. Lipner, and K. K. Young. (1989) Hindu Ethics: Purity, Abortion, and Euthanasia. Albany: State University of New York Press.
- Crawford, S. C. (2003) Hindu bioethics for the Twenty-first Century. Albany, NY: State University of New York Press.
- Crawford, S. C. (1995) Dilemmas of Life and Death, Hindu Ethics in A North American Context 1995. Albany, NY: State University of New York Press.
- Firth, S. (2005) End-of-life: a Hindu view. The Lancet. 366(9486): 682-86.
- Lakhan, Shaheen. (2008) Hinduism: life and death. Student BMJ. 16(18):310-11.
East Asian bioethics
- Renée C. Fox and Judith P. Swazey. (1984) Medical Morality Is Not Bioethics: Medical Ethics in China and the United States. Perspectives in Biology and Medicine 27(3):336-60. PDF
- Masahiro Morioka. (2015) Feminism, Disability, and Brain Death: Alternative Voices from Japanese Bioethics. Journal of Philosophy of Life 5(1):19-41. PDF
- Ole Döring. (2006) A Confucian Asian Ethos? Essentials of the Culture of East Asian Bioethics. East Asian Science, Technology, and Medicine 25 (2006):127-49. PDF
Notes
External links
- Bioethics entry in the Internet Encyclopedia of Philosophy.
- "Feminist Bioethics" at the Stanford Encyclopedia of Philosophy
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